Saturday, September 15, 2012

Emmaus Roadies!

This morning we joined a few hundred other people in the Step Forward walk to raise money and awareness for Tuberous Sclerosis Complex (TSC).

Our dear friends, Dan and Laurisa Ballew, have a little girl named Emmaus who was born with TSC.  People who are born with TSC lack the gene that inhibits tumor growth, so non-malignant tumors grow uninhibited in vital organs like the lungs, kidneys, heart, brain, skin, etc.  Emmaus has tumors in her heart, skin and brain.  As a result of the tumors in her brain, she suffers from daily seizures which in turn cause developmental delays.

From the time Dan and Laurisa found out that Emmaus would be born with this disorder, we have been praying with them for Emmaus' health and healing.
This is Emmaus at Children's Mercy Hospital when she first began having seizures at eight weeks old.
Laurisa asked us to link to this post today.  I hope you take a few minutes to visit their blog and especially to watch the video embedded here:



As the video says, TSC is what researchers call a "linchpin disease" meaning that breakthroughs in TSC research could lead to breakthroughs in many other diseases including autism, epilepsy and cancer.

Please consider donating $10 or more to the TSC alliance here.  Even though the walk is over, it's not too late!  Help to Unlock the Cure.


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