Tuesday, November 13, 2012

Prayers for Emmaus and a thank you

We want to invite you to pray for our friends, the Ballews and their daughter Emmaus, but first a quick thank you:

We have been overwhelmed by the response to our One of One Hundred Project.  We already have 12 people/families who have committed to raising $300 each for our Chinese adoption!  That's 12% of our goal of 100 people in less than 24 hours!  (Aren't you impressed by my math skills?)  We are so very grateful to each of you who have signed on and to those of you who are simply considering it.  I know if is a lot to ask, but we believe God can do big things and we hope you choose to be a part of it!

Check out this post for more information and this page to see who has already committed!

We've talked about our friends, Dan and Laurisa Ballew on this blog before (here, herehere, here, herehere and most recently here.)  Their little girl, Emmaus, has a rare genetic disease called Tuberous Sclerosis Complex (TSC).  Children born with TSC lack the gene that inhibits tumor growth so Emmaus had tumors growing in her brain and heart.  The tumors in her brain have caused daily seizures since she was just a wee one.  Those seizures have been controlled by a medication, but haven't been eliminated.  As a result of the seizures, Emmaus has experienced delayed development.  She's 18 months old and Laurisa estimates that she is 9 months old developmentally.

A few weeks ago, Dan and Laurisa took Emmaus to St. Louis to have some tests run at a hospital there that has a TSC specialist.  One of the tests revealed that nearly all of her seizures are being caused by one particular tumor.  The specialist told them that the tumor was operable and that if he was able to remove it, Emmaus might be nearly seizure free.  And free from seizures, she could have the opportunity to catch up developmentally.

This isn't a permanent fix.  It's not a cure.  Emmaus has many tumors in her brain that may begin to cause seizure activity at any point.  But since this tumor is the cause of nearly all of the seizures they monitored during her stay and since it is in an accessible part of the brain, it is operable.  And that is good news.

So, Emmaus will be having surgery this Thursday morning.  Brain surgery.  Brain surgery.

Please pray for Emmaus.  Pray for the surgeon who will operate on her sweet little blond head.  Pray for Dan and Laurisa as they endure the next two days of anticipation and the wait during the surgery.  Pray for the three of them as Emmaus recovers post-surgery.  Pray that it would be a successful surgery with no complications.  Pray that the result would be a decrease in seizure activity and that Emmaus would begin developing quickly.  Pray for peaceful hearts for her family.  Pray.

Here's a post from Laurisa's blog that answers the FAQs and will give you some more information.

I'll leave you with this:

And a note from Dan and Laurisa:

We are the Ballews- Our daughter Emmaus was born with a disease called Tuberous sclerosis, that causes uninhibited tumor growth in her body. She has heart and brain tumors currently. She will undergo brain surgery to take out a tumor that is causing most of her seizures.  
We are praying for safety in her surgery. That surgery would be successful and seizure freedom and development would be the result. We are praying that our story of hope, would lead people to know the goodness and faithfulness of Jesus.

Aren't they awesome?  Check in with her blog to follow along as they keep us all updated on Emmaus' progress.  Thanks for joining us in prayer.  Your prayers matter!


Katy said...

Praying for that adorable little girl and her mom and dad!!!

Dana Butler said...

How did her surgery go, Kelsey?