Friday, November 1, 2013


...makes me laugh every time.

It was taken a few months ago and she's grown and changed so much!

We have Faith's surgery scheduled for December 10th.  They'll do the MRI first thing in the morning, then the ear surgery, then the hearing test.  Should be about 3 hours when it's all said and done.  In the meantime, we have a few pre-surgery appointments coming up.  She has all of these small problems that are probably no big deal but could be a really big deal.  The enlarged ventricles in her brain being one.  Another being a minor congenital heart defect - patent ductus arteriosus (PDA).  We will meet with the anesthesiologist prior to surgery as well as the ENT and the cardiologist to make sure none of these small problems will cause big problems in surgery.

On one hand, every doctor has told me these things with a tone that says, "No big deal.  Nothing to worry about."  But on the other hand - and I'm no doctor, but I'm pretty confident about this - your brain and your heart are kind of important organs.  So anything that is not working exactly the way it should is a big deal just because we're talking about major organs here.  The funny thing is that neither the enlarged brain ventricles nor the heart defect are related to Down syndrome.  Her heart defect is more likely due to her premature birth than her extra chromosome.  And the enlarged ventricles in her brain are just one of those genetic lottery things.  The tiny ears though?  We can totally blame those on Down syndrome.

I'm a worrier by nature.  I tend to let small things balloon up into big problems in my mind.  Mole hills and mountains if you will.  So I'm trying to stay ahead of the game with this and not over think it.  All of these things need to happen and no amount of obsessive worrying will change that or the outcome. I'm also refusing to think about the medical bills associated with all of those specialists.  So far, my coping mechanisms are denial (picture me with my fingers in my ears and eyes closed saying "Lalalalalalala" loudly) and distractions.  Like this:

Now you, too can watch those seven glorious seconds any time you need a pick-me-up.  It works, I tell you.

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